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What is a
Developmental
Disability?

Resources

New Ticket to Work Health Assurance Program enables
Missourians with disabilities who have earned income to
qualify for Medicaid.

>> More Information



Network of Care

DMH-MRDD Individualized Supported Living Manual

To submit a resource site to be included in this listing, complete the on-line e-mail form with your submission and its internet address. Please keep link and resource submissions relevant to the Developmental Disability fields, and use the word LINK in the subject line of the message. Select a category below to view the selections and read a brief description of each site.

 
Woman playing with a little girl. Both of them have their hands in a paint bucket.
 

ABLEDATA
ABLEDATA provides objective information about assistive technology products and rehabilitation equipment available from domestic and international sources.

Assis-TECH, Inc.
Has been the leading information technology proposal support company in the Washington, D.C. area since 1989. Provides nationwide support for federal, state and local, and commercial proposals.

Rehabilitation Engineering Research Center on Technology Transfer
Provides an overview of the technology transfer process as it relates to assistive and trans-generational technology.

Closing the Gap:Microcomputer Technology for People with Special Needs
Assistive technology resources for children and adults with special needs and explains how technology is being implemented in education, rehabilitation, and vocational settings around the world.

Technology Access Center
Services for people of all ages who have a disability, their families, agencies, teachers, employers and others. Services include network and information referral, funding resources, community education, evaluation and training, and computer summer camp.

Missouri Assistive Technology Project
Provides opportunity to increase access to assistive technology for Missourians with all types of disabilities, of all ages.

 

Ergoguys
Retailer of assistive technology equipment and supplies who passes on low overhead costs to the consumer. Always researching new and exciting products to offer customers.

Break Boundaries - REACH (Remote Electronic Access & Control Hands-free)
A division of Home Technologies Corporation whose goal is to help people with mobility impairments increase their independence, and improve their quality of life, with the help of cutting edge Assistive Technology.

 

Freeware Home
Downloadable programs that could be helpful for individuals with various forms of disabilities.

 

 

>> More Information
"The Social Security Administration has released the 2006 edition of what many people simply call the "Red Book," which is a summary guide to employment support for individuals with disabilities under the Social Security Disability Insurance (SSDI) and Supplementary Security Income (SSI) programs. "

 

"Workplace Technologies for People with Disabilities"
This new employment-focused guide provides information on how employers and service providers can utilize assistive technology to make workplaces and service centers accessible to people with disabilities.

Job Accommodations Network
A free consulting service designed to increase the employability of people with disabilities by providing individualized worksite accommodations solutions, technical assistance regarding the ADA and other disability related legislation, and educating callers about self-employment options.

Missouri Works!
The official Workforce Resource website for the State of Missouri for both job seekers and businesses seeking to fill positions.

 

Missouri Career Networks
Fast, reliable, secure Web Hosting. Guaranteed uptime, no setup fee or annual commitment, generous storage and band with, free technical support, and low cost flexible plans available.

 

APSE-MO - The Network on Employment
A national organization committed to improving and expanding integrated employment opportunities, services, and outcomes for people with disabilities.

 

University of MO-Columbia Region VII CRP-RCEP
Provides strategies to build the capacity of community rehabilitation programs resulting in increasing community inclusion and integrated employment for persons with disabilities. Includes training and education, leadership development, technical consultation, and information sharing.

 

Disability Benefits 101
Disability Benefits 101 (DB101) helps workers, job seekers, students and service providers understand the connections between work and benefits. In addition to the Benefits-to-Work Calculator and the Job-to-Job Calculator, a new calculator called School and Work is now available for youth with disabilities.

 

 

Medicaid Exception Request.pdf - 92.59K

If you are a Medicaid recipient and have lost a service that is medically necessary, you can apply for a Medicaid Exception. A Certificate of Medical Necessity must accompany the exception request.

 

Certificate of Medical Necessity.pdf - 19.89K

The Medicaid Certificate of Medical Necessity along with the Medicaid Exception Request form require a physician's statement of medical need. The physician must indicate if the request is an emergency or non-emergency.

 
Medicare Booklet
The attached booklet outlines Mental Health Benefits covered by MediCARE

US Department of Health and Human Services
Provides information regarding HHS as the federal government's principal agency for protecting the health of all Americans. They provide essential human services, especially for those who are least able to help themselves, with more than 300 programs, covering a wide spectrum of activities.

 

Missouri Department of Mental Health
Information and services available regarding: (1) the prevention of mental disorders, developmental disabilities, substance abuse, and compulsive gambling; (2) the treatment, habilitation, and rehabilitation of Missourians who have those conditions; and (3) the improvement of public understanding and attitudes about mental disorders, developmental disabilities, substance abuse, and compulsive gambling.

 

Missouri Medicaid Manuals
The division of Medical Services (DMS) has published 27 provider manuals along with 4 addenda and 7 billing layout manuals for viewing on the Internet. This link provides assistance in navigating the manuals with an overview, answers to frequently asked questions, and definitions of common terms.

 

Equip your Neighbor Partnership
Collects used DME and then distributes free, used durable medical equipment to anyone in the St. Louis and surrounding areas who are in need of items.

 

 
Midwest Special Needs Trust
Created in 1989 by state statute, Midwest Special Needs Trust is a non-profit organization established for the purpose of administering special needs trusts. If properly structured and administered, special needs trusts do not affect an individual’s eligibility for benefits such as SSI or Medicaid.
Americans With Disabilities Act Information & Technical Assistance
this site can direct an individual to ADA standards regarding: employment; public transportation; telephone relay service; proposed design guidelines; education; health care; labor and housing.
Department of Elementary & Secondary Education
This site is an “all in one” webpage for Missouri school issues. Topics include: Curriculum, finance, certification, special education, laws, career opportunities and vocation rehabilitation
Missouri Department of Economic Development
This Department is the lead agency for economic, community, workforce and tourism development in Missouri.
Department of Mental Health
The three Divisions under this Department are Alcohol and Drug Abuse, Comprehensive Psychiatric Services and Mental Retardation/Developmental Disabilities. From this site an individuals can also access Network of Care.
 

DMH MR/DD Regional Centers
From this webpage, an individual can find regional center locations along with habilitation centers across Missouri. This site will also contain the most recent Division Directives along with “current issues”.

Governor's Council on Disability
Promotes full participation and inclusion of the nearly 1 million Missourians with disabilities in all aspects of community life by educating citizens, businesses, schools, universities and others of their rights and responsibilities under the Americans with Disabilities Act.
Missouri House of Representatives
A user friendly website to track bills, lookup a Representatives, and listen to live debate.
Individuals with Disabilities Education Act
a website to assist individuals find federal legislation and regulations regarding public education related to students with disabilities.
Missouri General Assembly
From this site, you can look up bills or Legislators along with view Missouri’s Constitution and take a virtual tour of the Capital
Missouri State Senate
Provides information regarding Senators, bill tracking, calendar of bills or you can listen to live debates.
Missouri State Home Page
From this page, you can find anything relevant to Missouri including: Looking up legislators or legislation; Amber Alert warnings; Lottery numbers and Homeland Security.
The Library of Congress Federal Legislative Information
Keeps citizens informed of current and past federal legislation.
This site also provides information on the Supreme Court and the legislative process
U.S. Census Bureau
Provides data about the nation’s people and economy.
 
Project Vote-Smart
Provides background information on all state and national elected officials. This website includes biographical, issue positions, voting records, campaign finances and interest group ratings.

DisabilityInfo.gov
User friendly disability website that has links to more than a dozen governmental agencies and many non-profit organizations.

 

Legal Serives of Missouri
Providing legal services to low income and elderly people in Missouri.

 

NASDDDS
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is a nonprofit organization, established in 1964, to improve and expand public services to people with mental retardation and other developmental disabilities.

 

Missouri Planning Council for Developmental Disabilities
The Missouri Planning Council for Developmental Disabilities (MPCDD) is a federally funded, 23-member, consumer-driven council appointed by the Governor. Its mandate is to plan, advocate for, and give advice concerning programs and services for persons with developmental disabilities that will increase their opportunities for independence, productivity, and integration into communities.

 

  Missouri Catalog of State Assistance Programs A Listing of Grants, Loans, and Assistance Programs The 2007 catalog was created in partnership with: Missouri Association of Counties Missouri State Agencies
The catalog provides all Missourians, non-profit agencies, state and local governments and private companies with detailed information about state assistance programs and how to apply for the programs. The catalog is available here
Challenge Grants for Technology in Education
The Office of Educational Research and Improvement (OERI) makes these grants to consortia comprised of one or more school districts in high poverty areas, businesses, libraries and other appropriate agencies or organizations for the purpose of improving and expanding new applications of technology.
Federal Register Online
Published by the Office of the Federal Register, National Archives and Records Administration (NARA), the Federal Register is the official daily publication for rules, proposed rules, and notices of Federal agencies and organizations, as well as executive orders and other presidential documents.
The Foundation Center
Goal is to strengthen the nonprofit sector by advancing knowledge about US philanthropy. This website will assist with finding grants in your area.
National Institute of Health Grants and Contracts
Run by: US Department of Health and Human Services, Office of Extramural Research. Provides grants for research, construction, training, career development, and conferences.
Technology in Education
Technology in Education is responsible for coordinating the development and implementation of the Department’s educational technology policies, research projects and national technology summits.

Robert Wood Johnson Foundation
These grants focus on the pressing health and health care issues facing our country. The Foundation works with a diverse group of organizations and individuals to identify solution and achieve comprehensive, meaningful and timely change.

 

Attention Deficit Disability Plus
This is a website dedicated to providing great answers to tough questions about Attention Deficit Hyperactivity Disorder and related conditions. They offer helpful resources and seminars that will benefit professionals and parents alike.
Attention Deficit Disability WareHouse
This leading resource helps with the understanding and treatment of all developmental disorders, including ADHD and related problems. This website has resources for purchase.
Autism Screening Tool
3 page questionnaire for use on screening Autism.
  Autism - could my child have autism
Autism Society of Wisconsin
Their mission is to promote lifelong opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities through information and referral, advocacy, public awareness, and education and support for Wisconsin’s Autism Society of America chapter, professionals and others who support individuals with autism in Wisconsin.
Children and Adults with Attention-Deficit Hyperactivity
(CHAD) is the nation’s leading non-profit organization serving individuals with AD/HD and their families. It has over 16,000 members in 200 local chapters throughout the US.
Autism Research Institute (ARI)
Their goal is a collaborative effort to capitalize on each organizations’ strength, coordinate programs and services and to promote unity within the autism community. This website links to other national Autism websites.
Child-Neurology Home Page
The main purpose of this website is to coordinate the available internet resources in Child Neurology, both for professions and patients.
Dyslexia
The British Dyslexia Association, whose vision is that of a dyslexia friendly society that enables dyslexic people to reach their potential.
Down Syndrome on the Web
Directory of Down Syndrome Internet Sites
Fragile X Syndrome
The Fragile X Research Foundation (FRAXA), whose mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research
 
Hydrocephalus Association
Their mission is to provide support, education and advocacy for individuals, families and professionals.
 
Moebius Syndrome Foundation
The Moebius Syndrome Foundation website. Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces.
National Organization for Rare Disorders
Site which provides information on a variety of rare disorders, including a rare disease database.
Prader-Willi Syndrome
Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome
Sensory Resources
Resources for raising children with sensory motor, developmental, and social emotional changes.
Sotos Syndrome
Basic information on Sotos Syndrome. A genetic condition causing physical overgrowth during the first years of life, which is often accompanied by delayed motor, cognitive and social development.
Tourette Syndrome
Official website of the national Tourette Syndrome Association (TSA), offering resources and referrals to help people cope with the problems associated with TS.

Upside!
An informal society of individuals, parents, and friends involved with the world of Down Syndrome.

 

AAIDD (Formerly AAMR)
AAIDD is the professional association run by and for professionals who support people with intellectual and developmental disabilities.
Allen, Shea, & Associates
Provides professional services in the area of planning, research, training, materials development, and evaluation within the field of human services with an emphasis on disabilities.
 
Association on Aging with Developmental Disabilities
Develops, links, and supports opportunities and services for older adults with developmental disabilities
The Boulevard
A Disability Resource Directory of Products and Services for the Physically Challenged, Elderly, Caregivers and Healthcare Professionals
CARF
CARF reviews and grants accreditation services nationally and internationally on request of a facility or program. Our standards are rigorous, so those services that meet them are among the best available.
Canine Companions
Canine Companions for Independence® is a national nonprofit organization that enhances the lives of children and adults with disabilities by providing highly-trained assistance dogs and ongoing support to ensure quality partnerships.
Children's Defense Fund
The Children's Defense Fund’s Leave No Child Behind® mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood with the help of caring families and communities.
The Council for Exceptional Children
International professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
disABILITY Information and Resources
Links to disability resources on the internet.

Family Village
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

Mainstream -- Magazine of the Abled-Disabled
News & Advocacy in Disability Rights
Missouri Developmental Disability Resource Center
Center that provides three levels of support. Whether you want to become more informed, get connected, or find ways to volunteer, MODDRC offers a network of support options to get you started and support you throughout your journey.
Music Therapy for ADHD
Website that looks specifically at how music can be used to help those who have attention deficit hyperactivity disorder.
National Association for the Education of Young Children
The National Association for the Education of Young Children (NAEYC) is dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children from birth through age 8.
National Center for the Dissemination of Disability Research
The NCDDR scope of work responds directly to NIDRR's concern for increasing the effective use of NIDRR(National Institute on Disability and Rehabilitation Research)-sponsored research results in shaping new technologies, improving service delivery, and expanding decision-making options for people with disabilities and their families.

National Dissemination Center for Children with Disabilities
Serves the nation as a central source of information on:

  • disabilities in infants, toddlers, children, and youth,
  • IDEA, which is the law authorizing special education,
  • No Child Left Behind (as it relates to children with disabilities), and
  • research-based information on effective educational practices
Office of Special Education Programs (OSEP)
Dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.
Our Kids
Our-Kids is a "Family" of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays.
Parent Advocacy Coalition for Educational Rights
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
Picture Recipes
A collection of picture recipes.
Learning Disability Resources
LD Resources is a collection of entries on various aspects of learning disabilities with comments from community members.
Quality Mall
A place where you can find lots of free information about person-centered supports for people with developmental disabilities.
Riggs Institute
The Riggs Institute is a self-supporting, non-profit literacy agency and publisher. We offer language arts curriculum for teachers and parents and formal training seminars as well.
 
The Council on Quality and Leadership (CQL)
The Council’s goal is to be partners and mentors to their customers, showing them how they can become even better at ensuring that people with intellectual disabilities and people with mental illness lead lives of dignity and quality.
Waisman Center
The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases throughout the lifespan. The center is one of nine national facilities that includes a Mental Retardation Developmental Disabilities Research Center and a University Center for Excellence in Developmental Disabilities
WebAble  
Dedicated to helping government agencies, technology vendors, e-commerce corporations, and educational institutions make their technology equally accessible to all people, including those with disabilities.

Winners on Wheels (WOW)
WOW empowers kids in wheelchairs by encouraging personal achievement through creative learning and expanded life experiences that lead to independent living skills.

 

Access Unlimited
Company which creates products that “allow easy access to ANY vehicle, from cars and vans to trucks and SUVs”
Braun
A provider in the mobility industry since 1963. Manufacturer of wheelchair and scooters. Their stated mission is "Providing Access to the World"
Bruno Independent Living Aids, Inc.
Bruno Independent Living Aids, Inc., is a global manufacturer of accessibility products designed to enhance the lives of those challenged by limited mobility.
Different Roads to Learning
Striving to meet the needs of families and professionals working with children diagnosed with autism spectrum disorders. Their product line contains over 250 products, including books, flashcards, and videos, along with other materials critical to Applied Behavior Analysis and Verbal Behavior programs.
 
Don Johnston, Inc.
Empowers educators with supplemental instruction and intervention solutions to help struggling learners build core literacy skills with confidence.
Duxbury Systems
Supplies software for Braille.
Ex 'n Flex
For individuals with MS - CP -- Para and Quadrapalegics -- Strokes -- Parkinsons and Arthritis who wish to develop their own home based exercise therapy program

Kempf- Katalavox
Design and manufacture a voice-control system called Katalavox. It is a speech-recognition system used in the following applications:

  • control of surgical microscopes in operating rooms
  • control of power wheelchairs and other devices for quadriplegics
  • control of electrical functions in automobiles for disabled drivers
Metlife - James T. Gentry, CFP
MetDESK® Specialist (MetLife's Division of Estate Planning For Special Kids)
Prentke-Romich Co.
Company which specializes in the development and manufacture of augmentative communication devices, computer access products, and other assistive technology for people with severe disabilities.
R.J. Cooper
Software and Hardware for Persons with Special Needs
SourceOne Medical
For people with mobility challenges, an electric wheelchair or scooter means freedom. You can go anywhere you want.
Telesensory
Helping people with visual impairments achieve greater independence through innovative, technology-based products

Independent Living Aids, Inc.
Selection of specially adapted low vision aids

 

Youreable
Information, Products and Services for people with disabilities.
Centre for Disability Studies
CDS is an interdisciplinary centre for teaching and research in the field of disability studies at the University of Leeds (England).

Northamptonshire People First
Central England People First organization.
People with learning difficulties speaking up for themselves.

 

  Missouri Protection and Advocacy
MO P&A is a federally mandated system in the state of Missouri which provides protection of the rights of persons with disabilities through legally-based advocacy.
Missouri Parents ACT
MPACT is a statewide parent training and information center serving all disabilities. Their mission is to ensure that all children with special needs receive an education that allows them to achieve their personal goals.
 
Independence Plus Grant
The goal of this project is to plan, develop and implement a life-enhancing consumer-directed system in Missouri that allows people with disabilities, and their families, choices and control over their supports and services.
 
Fanlight Productions
A leading distributor of innovative film and video works on the social issues of our time, with a special focus on healthcare, mental health, professional ethics, aging and gerontology, disabilities, the workplace, and gender and family issues.
 
Tyler
Tyler is a typical high school student who happens to have cerebral palsy and some other challenges. He has taken on a mission to educate the world about Ability Awareness.
   
   
Financial Assistance for Individuals/Families
   
 
UnitedHealthcare Children's Foundation
The UnitedHealthcare Children's Foundation provides financial assistance toward the family's share of the cost of medical services..
Missouri Department of Social Services
Food stamp application form, instructions and manual
Red colored curve
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